Anyone who can't deal with periods, avert your eyes.
I know I may have tricked you with the title of the blog into thinking I'm going to be reviewing cups of tea, but I'm actually going to share my experience of menstrual cups as a 27 year old disabled woman and I warn you its not all pretty and rosy.
We all know that periods aren't enjoyable. They're an absolute pain in the ass, every month (and sometimes sooner) from the age of 11-16 for around 40 years, regardless of whether or not you want to reproduce. And thanks to taxes in the UK, they can also be pretty expensive, costing me a minimum of £3 for pads and tampons! Along with all that waste to landfill!
So what if there was something that could make periods that little bit more bearable? Well, there is!
I was first introduced to menstrual cups by a good friend of mine with the same disability as me when I mentioned that I'd bought period pants (which are fabulous, get some, especially if you have a light flow). So, after an impulse buy of the SkoonCup, my journey began.
To add a little context, my period lasts for 6 days, every 28 days exactly. The first 2 days are horrendously heavy, leaking without fail. The next 2 days i describe as normal flow, and the last 2 days are very, very light, and when my period pants come into play.
Before I go into the two specific menstrual cups I've tried, I'm going to list some general advantages and disadvantages of using cups:
Disadvantages
1. They take a little while to get used to. Saying that, I was fine after the first period. Just stick at it!
2. The mess of the first try can put you off.
3. Costly purchase to begin with
4. You tend to use more toilet roll
5. You need wet wipes or a bottle of water for public toilets
Advantages
1. They are completely reusable and you don't have to empty/clean it for 12 hours (even on my first two days!!)
2. Less waste than pads/tampons
3. They last years and years
4. No scent! That icky pad/tampon blood smell completely disappears!!
5. Not drying at all
6. You can wear any underwear you like (Or none at all)
Right, to the cups!
SkoonCup
https://www.amazon.co.uk/dp/B00BRZWHE4?m=A707O3RUVN5N0&ref_=v_sp_widget_detail_page
As I said before, this cup was an impulse buy and I went for size 1, which is for those aged under 30 or pre childbirth, whichever comes first. It's pretty pricey at around £31, but please remember that should you find the right cup, it can last years and years, way longer than the 15 months that it will take you to spend that money on pads or tampons.
When it arrived, SkoonCup was way smaller and way more flexible than I'd imagined. My period wasn't for a couple of weeks, so it gave me time to stare it out and ultimately build up the courage to give it a go. I have it on good authority that this is a normal stage in the menstrual cup journey, so don't beat yourself up if you need a bit of time!
After a bit of research I was a little apprehensive to put it in... but it was actually really simple. I use the C fold technique which can be done 1 handed so is amazing for me, as I don't have the use of the majority of my left hand,, and I really don't think any other method is necessary. While I will always tell you to read the instructions, please do not try to put it where you perceive is below where you put a tampon. I did and a) it hurt and b) It was not comfortable when it was inserted and c) I did not trust it one bit!! Go with where it sits comfortably and naturally... not to mention that it'll just go there anyway and make you paranoid the whole time.
Advantages
1. It's really flexible
2. The material is really smooth with no writing or embossing on it, so would normally be really comfortable
3. The "stalk" is really flexible and not too long so you can't feel it
4. The material is coloured, so less blood stains
Disadvantages
1. So this isn't really a disadvantage of the cup, but it highlights that you have to find the right cup for you. It was too small. Don't get me wrong, the capacity was fine, but I couldn't reach it to get it out as I have a high cervix, and it was really tough to break the suction!! At one point I genuinely thought it was stuck, I was never going to get it out and that I was going to have to go to A&E. I did eventually get it out though.
So back to the drawing board!
This time, I did a lot more research online (blogs, reviews etc) and I completely recommend you get to know your body before a purchase. I know that sounds ick, but I promise it's worth it.
So after a lot of reconsideration, I decided on the DivaCup.
DivaCup
https://www.amazon.co.uk/Diva-International-Cup-Menstrual-Single/dp/B000FAG6X0/ref=sr_1_1_a_it?ie=UTF8&qid=1503142580&sr=8-1&keywords=diva+cup
At around £15, I can definitely say that more money spent does not mean that the menstrual cup will be right for you. DivaCup is amazing and it completely is the cup for me!! Again I went for size 1, which is aged before 30 and pre childbirth. It is quite a lot bigger than the SkoonCup, so takes a little more practice to insert, but once it's in it's comfortable and I feel so safe. If you don't trust the cup to begin with, use pantyliners or pads with it until you do. I have had no leaks even on my heavy days and it's big enough that I can reach it, break the suction and remove it easily. It has a little embossed logo on it which I was a bit apprehensive of, but you can't feel it! There's also a couple of embossed measuring lines in case they're needed, though again, I don't use them and they don't bother me. The "stalk" is a lot harder than the SkoonCup and that did bother me on the first day, but after that I got used to it, and it actually helps when getting the cup out. So all in all, £15 (which due to my heavy flow would last me 5 months) has been well spent for years of confidence.
So to conclude, menstrual cups are not an easy ride. They take time to get used to and need a lot of research before purchase, but if you give it a try you won't look back. For the first time in 14 years, my period does not bother me and I can handle it despite the lack of use of my left hand. I also have hip problems and chronic pain which are not affected or worsened by my menstrual cup.
If you want to give it a go, or are even just a little curious, do the research and go from there. Good luck, and I hope this blog is of help!
Steph xx
Saturday, 19 August 2017
Saturday, 21 January 2017
Hoping the sun will come back
Hi all,
Its been a very long time since I wrote on this blog. Since my life has been turbulent the last couple of months, I thought I'd update everyone. Please note that I will be writing about Physical and Mental struggles that some people may find distressing, so please don't read any further if you think it may upset you. I'd also like to say that all of my views are my own, and if you don't agree, that's fine, but please keep your negative views to yourself as I don't think I could cope with criticism. Might sound weird or self centred, but just being honest.
Beginning of 2016
In January 2016, I was struggling both mentally and physically. Anxiety was the main mental problem, and nothing I did was enjoyable anymore. Physically, my hemiplegia was exhausting, my right side was complaining, sick of always doing everything, and my left hip was excruciating, with pain levels of up to 8/10. Enough was enough and my Dr put me on Fluoxetine and my surgeon put me on a waiting list for an arthroscopy to have a look inside my left hip to find out what was going on.
The time before the hip operation was stressful, and having had 4 different dates, an 8 month wait and one on the day cancellation, I wondered if I'd ever get any better. However, I fought hard to come off Fluoxetine and took the decision to manage my mental health without the use of tablets.
August 2016
Finally, on 19th August, I underwent the arthroscopy surgery. Originally, they were expecting a small labral tear, however in reality, my hip was a but of a mess. There was a labral tear, which they did a debridement for, they also released a muscle, shaved the femoral head to get rid of a cam impingement and got rid of a "considerable amount" of scar tissue. I was told that I'd be off my feet for 6 weeks, partial weight bearing. Thankfully, I borrowed a wheelchair for this time, but it got me thinking that I could do with one long term, as it was liberating to get out of the house.
September 2016
Recovery was hard, but by this time was on track. Things were starting to get to normal, I met a baby nephew, and went on holiday. I thought my luck was finally in..... however all was not well. Pain in my left hip was coming back at an alarming rate, and by the time October came, I was on a stick full time and struggling to move.
November 2016
Despite being no better than pre op, mid-November I had to go back to work full time. I have bills to pay and a house to upkeep. I was not by any stretch of the imagination better, but I had no choice.
Along with the health issues, I also had notification that the disability living allowance that I had been receiving was coming to an end, and that I needed to apply for Personal Independence Payment. Let the forms begin. In my opinion, one I still hold, I am much worse than I was at the beginning of 2016 and so I certainly still needed the financial help the benefit provides, along with the car I had received through motability. We filled in the forms, sent them back and then we waited.
December 2016
At the beginning of the month, I had an appointment with my surgeon, which was an opportunity to ask him about the pain, which at this point, had returned right back to "severe". They concluded that the hip capsule was tightening back up due to my hemiplegia and the mild synovitis that they found during the operation could be causing a problem. More physio and intrajoint injections are needed. To this day, I'm just still on the waiting list.
On 18th December, I also had a PIP assessment. Even with my husband attending with me, it was not a pleasant experience. It was at a Health Centre (gym) near to my home, which was just one hit in the nuts, as I clearly didn't belong there. Along with this, there was no accessible seating and I had 40 minutes having to explain what I couldn't do, over and over again. But it was over, and I could finally concentrate on enjoying Christmas and New Year.
January 2017
The first 2 weeks of January were relatively quiet. But my life was about to change dramatically.
Last Saturday, I had my PIP decision letter, the mobility component is being reduced and I'm therefore losing my car. I'm devastated. I have a mortgage and bills to pay, and I can't get public transport to get to work. Panic set in. But my first port of call was to request the reports from the assessment. If the report was fine and nothing was untoward, I would just have to accept the decisions. More on in a paragraphs time.
Tuesday, my life again took a tumble, when my beloved guinea pig died of old age, at 6 years old. People may say "it's only a guinea pig" but in reality, he was a great friend and awesome grumpy company. He is already sorely missed, and my life and living room feel bare.
The report came through on Thursday. There are so many anomalies. I have to appeal, even if just to set the record straight. I am not saying I deserve the world, but I can't have a report so factually incorrect on my record.
This week has turned my life upside down. I live in a remote pit village and without a car, I will literally be stuck. I can't get to work, can't get to mums, can't get anywhere. Without my guinea pig, I don't have company at home when my husband is not at home, apart from a hamster who is asleep a lot.
Along with that, and because of this, my anxiety is now through the roof. I'm anxious because I feel judged, by professionals, by friends, by strangers. I can't answer the phone or answer the door. I can't feel happy, and the last 4 days I have felt so sad and can't pull myself together.
Where I go from here I don't know, but I needed to write this blog to get my thoughts out there, and to give anyone reading this the reason why I may be quiet or sad for a while.
Thanks so much for reading if you've got this far. Sorry its not a happy post and thank you for all your support.
Steph xx
Its been a very long time since I wrote on this blog. Since my life has been turbulent the last couple of months, I thought I'd update everyone. Please note that I will be writing about Physical and Mental struggles that some people may find distressing, so please don't read any further if you think it may upset you. I'd also like to say that all of my views are my own, and if you don't agree, that's fine, but please keep your negative views to yourself as I don't think I could cope with criticism. Might sound weird or self centred, but just being honest.
Beginning of 2016
In January 2016, I was struggling both mentally and physically. Anxiety was the main mental problem, and nothing I did was enjoyable anymore. Physically, my hemiplegia was exhausting, my right side was complaining, sick of always doing everything, and my left hip was excruciating, with pain levels of up to 8/10. Enough was enough and my Dr put me on Fluoxetine and my surgeon put me on a waiting list for an arthroscopy to have a look inside my left hip to find out what was going on.
The time before the hip operation was stressful, and having had 4 different dates, an 8 month wait and one on the day cancellation, I wondered if I'd ever get any better. However, I fought hard to come off Fluoxetine and took the decision to manage my mental health without the use of tablets.
August 2016
Finally, on 19th August, I underwent the arthroscopy surgery. Originally, they were expecting a small labral tear, however in reality, my hip was a but of a mess. There was a labral tear, which they did a debridement for, they also released a muscle, shaved the femoral head to get rid of a cam impingement and got rid of a "considerable amount" of scar tissue. I was told that I'd be off my feet for 6 weeks, partial weight bearing. Thankfully, I borrowed a wheelchair for this time, but it got me thinking that I could do with one long term, as it was liberating to get out of the house.
September 2016
Recovery was hard, but by this time was on track. Things were starting to get to normal, I met a baby nephew, and went on holiday. I thought my luck was finally in..... however all was not well. Pain in my left hip was coming back at an alarming rate, and by the time October came, I was on a stick full time and struggling to move.
November 2016
Despite being no better than pre op, mid-November I had to go back to work full time. I have bills to pay and a house to upkeep. I was not by any stretch of the imagination better, but I had no choice.
Along with the health issues, I also had notification that the disability living allowance that I had been receiving was coming to an end, and that I needed to apply for Personal Independence Payment. Let the forms begin. In my opinion, one I still hold, I am much worse than I was at the beginning of 2016 and so I certainly still needed the financial help the benefit provides, along with the car I had received through motability. We filled in the forms, sent them back and then we waited.
December 2016
At the beginning of the month, I had an appointment with my surgeon, which was an opportunity to ask him about the pain, which at this point, had returned right back to "severe". They concluded that the hip capsule was tightening back up due to my hemiplegia and the mild synovitis that they found during the operation could be causing a problem. More physio and intrajoint injections are needed. To this day, I'm just still on the waiting list.
On 18th December, I also had a PIP assessment. Even with my husband attending with me, it was not a pleasant experience. It was at a Health Centre (gym) near to my home, which was just one hit in the nuts, as I clearly didn't belong there. Along with this, there was no accessible seating and I had 40 minutes having to explain what I couldn't do, over and over again. But it was over, and I could finally concentrate on enjoying Christmas and New Year.
January 2017
The first 2 weeks of January were relatively quiet. But my life was about to change dramatically.
Last Saturday, I had my PIP decision letter, the mobility component is being reduced and I'm therefore losing my car. I'm devastated. I have a mortgage and bills to pay, and I can't get public transport to get to work. Panic set in. But my first port of call was to request the reports from the assessment. If the report was fine and nothing was untoward, I would just have to accept the decisions. More on in a paragraphs time.
Tuesday, my life again took a tumble, when my beloved guinea pig died of old age, at 6 years old. People may say "it's only a guinea pig" but in reality, he was a great friend and awesome grumpy company. He is already sorely missed, and my life and living room feel bare.
The report came through on Thursday. There are so many anomalies. I have to appeal, even if just to set the record straight. I am not saying I deserve the world, but I can't have a report so factually incorrect on my record.
This week has turned my life upside down. I live in a remote pit village and without a car, I will literally be stuck. I can't get to work, can't get to mums, can't get anywhere. Without my guinea pig, I don't have company at home when my husband is not at home, apart from a hamster who is asleep a lot.
Along with that, and because of this, my anxiety is now through the roof. I'm anxious because I feel judged, by professionals, by friends, by strangers. I can't answer the phone or answer the door. I can't feel happy, and the last 4 days I have felt so sad and can't pull myself together.
Where I go from here I don't know, but I needed to write this blog to get my thoughts out there, and to give anyone reading this the reason why I may be quiet or sad for a while.
Thanks so much for reading if you've got this far. Sorry its not a happy post and thank you for all your support.
Steph xx
Tuesday, 2 February 2016
Ups and Downs
During my life there's always been ups and downs.
It wasn't the best start, as I was starved of oxygen at birth so have left hemiplegia. Despite this, I had an amazing upbringing and managed to get on with my life.
At 15, I started to get hip pain, which was diagnosed as bursitis. 5 years later, it was found I had hip dysplasia and had a Peri-Acetabular Osteotomy, where they changed the structure of my pelvis.
A year later, I passed my driving test and moved out with my then boyfriend, which was one of the happiest times of my life, but then, health strikes again and my hip needed another op.
Throughout the next 4 years my hip still wasn't great, but in 2014 married my amazing man and got myself a lovely new job. Again, that year was the best in life.
Alas, now my body has had enough again. My left hand is ridiculously spastic, my right wrist is sick of doing all the work and I'm back on a waiting list for more hip surgery. Add mental health issues to all that and I'm struggling a tad.
Whilst this post is short, and may seem like I'm throwing myself a pity party, but the reason I've written it is to remind myself that life is full of ups and downs and that I've always got through the bad times, and cherished the good.
Anyone else going through this... You got this. You can do it Xx
It wasn't the best start, as I was starved of oxygen at birth so have left hemiplegia. Despite this, I had an amazing upbringing and managed to get on with my life.
At 15, I started to get hip pain, which was diagnosed as bursitis. 5 years later, it was found I had hip dysplasia and had a Peri-Acetabular Osteotomy, where they changed the structure of my pelvis.
A year later, I passed my driving test and moved out with my then boyfriend, which was one of the happiest times of my life, but then, health strikes again and my hip needed another op.
Throughout the next 4 years my hip still wasn't great, but in 2014 married my amazing man and got myself a lovely new job. Again, that year was the best in life.
Alas, now my body has had enough again. My left hand is ridiculously spastic, my right wrist is sick of doing all the work and I'm back on a waiting list for more hip surgery. Add mental health issues to all that and I'm struggling a tad.
Whilst this post is short, and may seem like I'm throwing myself a pity party, but the reason I've written it is to remind myself that life is full of ups and downs and that I've always got through the bad times, and cherished the good.
Anyone else going through this... You got this. You can do it Xx
Sunday, 21 December 2014
Pain Management using Animals
Through childhood, I have always loved animals. When asked at 7 years old what I wanted to be when I grew up, my answer was a zoo-keeper. I had a lot of pets too, from hamsters when I was around 5 years old to having guinea pigs at 14, cats throughout, and when I got to 16, we got a beautiful dog who is thankfully still with us (or rather my parents...). I LOVE animals... I just didn't realise what an impact they would have on my life.
Growing older through adulthood, I have learnt to accept that due to health issues, I live my life with chronic pain. I have Left Hemiplegia and Hip Dysplasia, along with the early onset of osteoarthritis in my hips. I won't lie and say it doesn't affect me, it does. Its a major influence of my life, but I have learnt to live relatively normally whilst factoring in the pain. I have a full time job and have a wonderful husband and a lovely house. But I haven't always been so thankful.
Last year, around September, I let life get on top of me a bit. There was a lot going on at work, my mum was very poorly, and my health was failing for the umpteenth time. I was diagnosed with anxiety and depression, and ended up taking 2 months off work whilst barely leaving the house.
Then, through no choice of my own, I inherited Florence, a timid little hamster who didn't have the best start in life and who needed a home.
The first few weeks of having Florence was a little bumpy. It sounds stupid, but having the responsibility of keeping a living thing alive was a daunting prospect, especially when I was so low. But, around a month after I inherited her, she started to be very sociable towards me, showed me love, and, a major plus, stopped peeing on me. We were starting to bond, and I was starting to smile. By March, I went to Australia, with Florence being babysat, relatively relaxed and happy.
When I got back from Oz, Florence was very hyper, and I'm glad to say, shes stayed that way, although shes still very loving towards me. It's like we have an unspoken agreement. If i'm ever in pain, she looks at me from her cage, as though expecting me to get her out and she treads ever so carefully over me. She's a star.
3 weeks after being back from Oz, I was browsing on a website for pets when I saw an advert for 2 very hairy guinea pigs, which was written in the 1st person begging someone to give them a good home. I couldn't resist, and after persuading my husband (then fiance), we welcomed Delboy and Rodney into our home.
The bonding between me and the guinea pigs didn't come as quick or easy as Florence. They had clearly been very badly treated, and whilst they never bite, they were not in the habit of trusting humans. They had matted hair and very long nails, and seemed starving all the time. We have now had the guineas 8 months, and only now have they started to trust me. They still run away if we move too quick, but they're getting there, and they have started, like Florence, to interpret my pain. As recent as yesterday, I had a very bad pain day, it was an 8. The guinea pigs stare their adorable stare and squeak very occasionally. When I give them lap time, they make sure they move slowly if at all, and I got a couple of kisses as if to make sure i'm ok.
It goes further than understanding though. It physically makes me feel better, as though it takes my mind off it. I would have a houseful of animals could I do so... unfortunately, my husband has said no more, and I don't really have the room, but I really do recommend, should anyone struggle coping with pain, try adopting an animal, big or small. It has really got me out of a hole I was in.
Thanks for reading, I love you all..
Steph x
Tuesday, 9 September 2014
So in my last blog post...
... I stated that I'm stressed because lots going on.
One thing, I can't divulge, but I can say this much. I am having to fight for everything and just don't have the energy for it. They will end up winning.
Over the last few months, I've been having more issues with my hip. In July I was told by my specialist that I have wear and tear on my hip (otherwise known as osteoarthritis) and so will eventually need a hip replacement. Whilst at the moment, I am not on a waiting list for surgery, I am being told to manage the pain and maintain the wear and tear as long as possible. It is, yet another fight, that I may not have the energy to fight.
My mum is poorly again, and will need more surgery... Next Thursday
I start a uni course next week... More energy used, although I genuinely believe that this will be worth it.
I'm sorry I'm not my usual, positive, self, I'm just sick of fighting. You can't ride a wave with a broken ship. And my ship has a small hole which is letting water in.
One thing, I can't divulge, but I can say this much. I am having to fight for everything and just don't have the energy for it. They will end up winning.
Over the last few months, I've been having more issues with my hip. In July I was told by my specialist that I have wear and tear on my hip (otherwise known as osteoarthritis) and so will eventually need a hip replacement. Whilst at the moment, I am not on a waiting list for surgery, I am being told to manage the pain and maintain the wear and tear as long as possible. It is, yet another fight, that I may not have the energy to fight.
My mum is poorly again, and will need more surgery... Next Thursday
I start a uni course next week... More energy used, although I genuinely believe that this will be worth it.
I'm sorry I'm not my usual, positive, self, I'm just sick of fighting. You can't ride a wave with a broken ship. And my ship has a small hole which is letting water in.
Fatigue and Pre existing disabilities
This post is probably more of a rant because I'm having bad anxiety at the moment, but it does have some truth in it.
Since about February last year, I have had increased muscle pain and a lot of fatigue and exhaustion. Whilst I agree that some of the fatigue is due to stress (there is a lot of things going on in life at the moment, I will write them in a separate post), I just can't believe that all of it is down to stress.
I went to the Drs months ago, and got some blood tests which included tests for anemia, but all came back normal so I was back to square one. After mentioning it to my Neurologist, I was told that it was down to partly stress and partly due to my disabilities (Hemiplegia and Hip Dysplasia. The main reason I don't agree with this is because it only started in January, whereas my Hemiplegia has been lifelong and my Hip Dysplasia since 2005.
It is therefore my opinion that medical professionals don't feel comfortable diagnosing you with a new condition if they can justify it within your pre-existing condition. If I am way off the mark, please do let me know, but also please tell me what I have to do to get taken seriously instead of fobbed off at every appointment.
Tuesday, 24 June 2014
Hypochondria it is then
So I rang the Drs today after having blood tests on Friday to be told the following:
Blood tests have come back normal, the doctor doesn't need to see you
Yes, lovely receptionist, the doctor may not need to see me, but I certainly DO need to see him. You see, if my bloods have come back normal, I am still not feeling well, so more investigation is needed. Unless of course, I am what is known as a hypochondriac.
So in hope of finding a doctor online, or someone who has been through the same thing, I'm going to sound exactly like a hypochondriac by listing my current diagnoses and my current symptoms, however small they sound.
Thank you for reading this, if anyone has any suggestions, please do share, I'm desperate for answers. Also, feel free to circulate this, in order to get answers.
I'm going to try another drs appointment next week.
Lots of love,
Steph x
Blood tests have come back normal, the doctor doesn't need to see you
Yes, lovely receptionist, the doctor may not need to see me, but I certainly DO need to see him. You see, if my bloods have come back normal, I am still not feeling well, so more investigation is needed. Unless of course, I am what is known as a hypochondriac.
So in hope of finding a doctor online, or someone who has been through the same thing, I'm going to sound exactly like a hypochondriac by listing my current diagnoses and my current symptoms, however small they sound.
- Left Hemiplegia - I have had this since birth.
- Hip Dysplasia - Diagnosed in 2010... I was originally mis-diagnosed with bursitis, which I do believe I have, due to the pain still being there and it still being swollen at times
- Anxiety - Suffered with this, as well as bouts of depression since early last year.
- Fatigue - This is currently my main issue. I can barely work 30 hours without the need to sleep all weekend. I barely do anything anymore, due to the need to sleep almost all the time. An example of this was on Sunday. I went to the cricket and almost fell asleep on numerous occasions. No it wasn't just that I was relaxed, and yes, I get plenty of sleep at night.
- Tendonitis in my right hand - I initially thought this was due to overuse, as I can barely use my left hand (I say barely, its non-existent really), however I went to physio and he was adament (bordering on argumentative) that I had injured the wrist/hand... I haven't
- Headaches - This may just be a mixture of tiredness and stress, but I am listing it anyway. I take paracetamol for a headache at least once a day
- Neck pain/ache - This is an odd one. I get real pressure on my neck, then if I put my head from side to side, it cracks... and hurts.
- Right ankle - cracks regularly... think this may be over compensation/use.
- Left knee hurts - It hyper-extends
- Slight nausea/dizziness at times - this is when I don't eat/am stressed.
- Slight IBS - I don't know whether this is even what is happening... If I am stressed or if I eat too much greasy food, I get an upset stomach... Please someone of a medical background confirm this?
Thank you for reading this, if anyone has any suggestions, please do share, I'm desperate for answers. Also, feel free to circulate this, in order to get answers.
I'm going to try another drs appointment next week.
Lots of love,
Steph x
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